I apologize to all my many followers (hahaha) for not posting in 3 weeks. April 2nd we went and when I say "we" I mean me, Claire & Cole. No other adult supervision. It worked out surprisingly well. Thankfully Cole is old enough to go the bathroom alone. And he is honestly the best with Claire. She increased and we headed back.
Last week was Claire's last liquid increase. This time Daddy took her, alone! I think this is the longest those two have been alone together since her birth. 6 hours in the car with Claire are like 20 hours with a normal kid. She asks rapid fire, off the wall questions. And while you are trying to think of the best way to answer her, she asks another. If you don't know her (your life is lacking if you don't know her) Claire has the voice of a cartoon character. It makes for a long day.
Anyway, they went, increased and headed home. Only after stopping at the gift shop in the hospital and getting a new stuffed animal with Nana money!! Adam said she did great. To say I am thankful for that man would be an understatement. But, I hate when people go on and on about their spouse on social media. Usually means there is a problem, overcompensating. So I will be quick - God knew what I needed and gave me Adam. He is the best decision I have made in my life. Couldn't do any of this life without him. There - I'm done. Let's move on.
Claire is now on her last dose increase and has done beautifully. We go back Thursday to start on capsules. The capsules are "powder" filled and we empty them in a food item and she eats it. This is to allow the mixture to move all around her mouth, not straight down her throat. This increase will not actually increase until the next time. So this capsule we get Thursday is going to be a lateral move. Same dosage, different form. You get it.
Here's where we are concerned - Claire doesn't eat much "food". And the food they recommend is pudding (it's too squishy mama) or oatmeal (hahahaha), or ice cream. Ice cream it is. That means breakfast too. And this baby doesn't just say "I don't want it," she throws up. Super fun around a dinner table. Claire gags, Adam lowers his head, I narrow my eyes and Cole hits the dirt. Chicken! It's hilarious - I've said before our life is sort of like a sitcom.
Anyhoo - we appreciate everyone's prayers, this is working. God is performing a miracle everyday she is able to tolerate her dose. Please continue to pray for our travels - lots of time on the road. Also, pray that Claire finds a food that works for this next stage.
Again, thank you all!!!
