We woke up this morning in Dallas and headed out to Mid City Hospital for Claire's full day of OIT. This was the day to see what she's able to do. I honestly had complete peace. There was no nervousness, no anxiety, nothing. Claire on the other hand had a pretty nervous stomach at first. She was so scared they would insist on a skin test again. Thankfully they didn't.
Because of her anaphylactic reaction to the skin test this summer they started her at 1/2 the dose of what they would normally do. Every dose they do is repeated once. So, this dose was given to her twice 15 minutes apart. I held my breath for the first dose, and of course watched her like a hawk. NOTHING, nothing happened. I was immediately encouraged.
We were in a large room with very comfortable recliners with 3 other families doing the same thing. All boys! Once she was able to handle the first 2 "mini" doses they brought the other kids in so they could all be on the same schedule.
Every 15 minutes the nurse went around with one dose, then the same amount repeated, then increased. This went on for hours, no reaction. At the last 2 hours (4 more doses) Claire's stomach started to cramp, face flushed, just didn't feel well, throat itchy. So the nurse decided we should sit out a round. And that's what we did. Gave her body a break, watched a movie and snuggled. When the buzzer went off for the next time Claire was feeling better. She was feeling better so we went on. One the last dose of the day her stomach was really hurting a few hives starting on her face, and flushed. Now we had to go into the observation room. Claire was heavy and gagged a little, but the nurses didn't freak out (so thankful for them). They checked her vitals and let her just lay down. We did this for about 30 minutes. When it was time to go, she was feeling much better. Like her happy, talking self.
The nurse gave us our instructions, only took 8 hours to get to this part. Claire will now be given 1 ml twice a day. They were hoping to get her to 2 ml twice a day, but her body isn't ready. It truly amazes me how God designed our body to warn without panic. Just a subtle "that's all I can do". And that's exactly what her body did.
It was now time to go downstairs to the lab for her blood work (which we didn't know we had to do!!!). She was so brave, sat there with her head buried and let them take 3 vials. NOT ONE TEAR!
That's it. First day. In the books. Already gave her the dose for tonight and ready for bed. So thankful for your prayers. This will be ongoing for the next 6 months at least, so keep them coming.
2 comments:
So thankful that this long first uncertain day is behind you!! Thankful for Claire's success, and your determination to do "all that can be done" for our precious baby. Keep the posts coming. You never know whose life you may touch. God is so faithful. Love you and glad you are home, Mama and Daddy
You're my hero!!
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